Help Raise Awareness of Vascular
Ehlers-Danlos Syndrome
Make a donation
Your love and support are greatly appreciated.
We are a certified 501(c)(3) tax-exempt organization, EIN is 99-1144492.
Frequency
One time
Monthly
Amount
$10
$20
$30
$40
$50
Other
0/100
Comment (optional)
Our Mission
The Matthew Rau vEDS Foundation was established in loving memory of Matthew Rau, who lost his life to Vascular Ehlers-Danlos Syndrome (vEDS). Our mission is to raise awareness, advance research, & improve the quality of life for individuals & families affected by vEDS. Through education, advocacy, & community engagement, we strive to prevent future tragedies & ensure earlier recognition & better care for those living with this rare condition.
Understanding vEDS
WHAT IS VEDS?
Vascular Ehlers-Danlos Syndrome, often called vEDS, is a rare & life-threatening genetic connective-tissue disorder caused by mutations in the COL3A1 gene, which affects the body's ability to produce type III collagen - a critical protein that helps keep blood vessels, organs, & tissues strong.
Because this collagen is weakened, individuals with vEDS live with a higher risk of sudden arterial rupture, internal bleeding, & organ complications.
WHY EARLY AWARENESS MATTERS
vEDS is frequently overlooked or misdiagnosed. Early genetic testing & proper medical management can help individuals & families understand their risks, plan proactive care, & access the support they need.
Our Events
Walk With Us in Matt's Memory
Join us for our Memorial Walk in spring 2027. Together, we can honor Matt's memory and
support vital research for vascular Ehlers-Danlos Syndrome.
Event details and the registration link will be posted shortly.
We received an outpouring of support beyond our expectations at our first event and hope
for your continued love and support.
.
Our Impact
Education & Awareness
We provide essential resources and educational materials to help families navigate the complexities of vEDS and connect with vital support networks.
Advancing Research
We are committed to funding cutting-edge research and critical studies to advance the understanding of vEDS and accelerate the discovery of new treatments.
Community & Hope
We foster a supportive community for patients and families, ensuring no one walks this path alone and that hope and advocacy remains our shared priority.